Not only are we walking the path with you; helping your child with their therapy needs and supporting and guiding you along the way – we’re also here to assist with other resources that might be helpful to your child and your family. Here, you’ll find information on the NDIS, information flyers on specific learning difficulties as well as links to external resources you may find useful.
National Standards for Disability Services – Easy Read Version
There are six National Standards that apply to disability service providers. These are: 1) Rights 2) Participation and Inclusion 3) Individual Outcomes 4) Feedback and Complaints 5) Service Access and 6) Service Management.
The standards have been written by Government in collaboration with people with disabilities, their families and their carers, advocates of people with disability and professionals who work with people with disability. People with disability, their families and their carers must receive the best service possible from their providers and these standards provide a guide for what should be expected.
WA NDIS and NDIS
The transition from WA NDIS (National Disability Insurance Scheme) to NDIS is currently taking place for families. Some families have asked us how best to prepare for their NDIS planning meetings.
Here are some tips:
- Have copies of all your reports handy
- Think about any equipment you currently have or might need in the next 12 months
- Think about your short term and long term goals for your child – your child’s FSSP can help with this
- Let Kids Are Kids! know when your planning meeting is so we can help prepare a summary of services provided and future recommendations for services for your child
- You can invite your key worker to attend your planning session
It is important to think about how you want to manage the funds in your child’s plan. You can access information about plan management from the NDIS website but here is some useful information to help you.
NDIA Management is also called organisation managed. This is the easiest option for most families where the NDIA pays Kids Are Kids! on your behalf. Please note that if you choose this option, you can only use NDIS registered providers. Kids Are Kids! is a NDIS registered provider.
The NDIS has lots of information on the website about self-managing and its advantages. One of which is that you do not need to use NDIS registered providers. The NDIA provides you with funding so you can pay for therapy services. It is helpful to think about the steps you need to complete:
- Managing your funding to make sure you have enough funds to cover the services. NDIS recommends that you open a separate bank account.
- Claiming and paying for supports by making payment requests through the My Place portal and paying for your supports on time.
- Keeping records of invoices and receipts to show that you have paid for your supports using NDIS funding.
- Showing how you’ve used your self-managed funding towards reaching your goals at your plan review.
The NDIA pays your plan manager who will pay your providers for you. Your plan manager must be registered with the NDIS.
Regardless of how you manage your child’s funds, Kids Are Kids! works in a family centred way which means that you control what the service looks like, for example, selecting your goals and working out how your services are delivered (e.g. frequency of visits, where the visits occur, which therapies you access).
When you first get your NDIS plan it is really helpful if you can share this with Kids Are Kids! so that we can develop a service agreement with you. Service agreements are required when commencing services under a new plan. They explain the terms and conditions of therapy, for example, cancellations and payments.
Who will do the Planning meeting with me?
Some families will have already met with a NDIA planner to complete their planning meeting. With the roll out of the ECEI(Early Childhood Early Intervention) and LAC (Local Area Coordination) partners in WA, things will be different. If your child is between 0-6 years, you will do your child’s planning meeting with an Early Childhood Partner, who has been engaged to act as your NDIA planning representative. If your child is 7 or older, you will do the planning with a Local Area Co-Ordinator (LAC).
If you would like additional support, you are welcome to invite your Kids Are Kids! Key Worker to attend your planning meeting with you.
What is ECEI?
ECEI stands for Early Childhood Early Intervention and is relevant for children up to the age of 6 years who have a developmental delay or disability.
The ECEI approach is rolled out across Australia so that all children experience a consistent approach to early intervention. In WA, the ECEI partner is Wanslea.
Wanslea employs ECEI coordinators who help children and their families access supports and services that are tailored to the child’s needs.
Does my child need to be at the planning meeting?
This is a personal choice – because this is a funding discussion, and you may be discussing sensitive issues, many families choose not to include their children. For older children who can express their wants and needs, the child would be encouraged to be involved – after all, this is their plan.
What if I am unhappy with my plan?
There are several avenues for appeal or plan review. We suggest contacting the person who did the planning with you as soon as possible to voice your concerns. If, on the other hand, your child’s circumstances change during the plan and a new need arises, there is an avenue called ‘Change of Circumstance’ where you can discuss additional needs that have arisen as a result of that, and can’t wait until your 12 month plan review.
How is therapy referred to within the NDIS?
Within your plan there are 3 main categories of supports (Core, Capital and Capacity Building).
Therapy is considered a Capacity Building support – a support that enables a participant to build their skills and independence. In the Capacity Building section of your plan, supports are further broken down by category and therapy comes under the ‘Improved Daily Living’ category which is defined by the NDIS as follows: ‘Assessment, training or therapy to help increase your skills, independence and community participation’.
Information Flyers and Useful Links
Does my child have a stutter?
A stutter is a disruption in the smooth and fluent production of speech, making the person’s speech sound jilted and effortful. No-one is a completely fluent speaker all of the time, and we’re all affected by tiredness, anxiety and excitement. However; the dysfluency of a child who stutters is different in both quantity and quality. Learn more in the Stuttering Information Flyer.
All of us worry about our kids learning to manage their emotions. After all, it’s emotions that so often get us off track and into trouble. Learn more in the Emotional Regulation Flyer.
Social Anxiety in Children
When children experience social anxiety, they’re afraid of situations where they might have to interact with other people or be the focus of attention. Often they’re worried that people will think badly of them or that they’ll do something embarrassing. For more information visit http://raisingchildren.net.au/articles/social_anxiety.html
Praise, encouragement and rewards
No matter how old your children are, your praise and encouragement will help them feel good about themselves. This boosts their self-esteem and confidence. Sometimes rewards can be useful too, especially if you want to encourage good behaviour. For more information visit http://raisingchildren.net.au/articles/praise_and_encouragement.html/context/288
Social and emotional changes in adolescence
Adolescence is a time of big social and emotional development for your child. It helps to know what to expect and how to support your child through the changes. For more information visit http://raisingchildren.net.au/articles/social_and_emotional_development_teenagers.html/context/1153
Back to school anxiety
Feelings of anxiety are not uncommon during times of change or transition. This is true for young people going back to school, starting kindergarten, or taking the step into high school. This transition can not only be experienced as stressful by the young person, but sometimes for the whole family. For strategies on reducing your child’s anxiety at school see the information flyer here.
One in five children to not have the adequate literacy skills when they enter school.
Read more about the importance of advocating for reading and writing activities with your child in their pre-school days. See the Literacy flyer here.
All babies develop at different rates. Lots of babies make eye contact and sounds early, but others might not until three months. If your baby doesn’t do something at the same age as other babies, it doesn’t necessarily mean you need to be worried. But sometimes delays in communication skills can be signs of more serious developmental disorders or developmental delay, including language delay, hearing impairment, intellectual disability and autism spectrum disorder. See the helping your baby to talk flyer here.
The decline in play of pre-schoolers and the rise in sensory issues.
An interesting blog with useful links to the balance of social skills versus academic skills in pre-school children. https://www.washingtonpost.com/news/answer-sheet/wp/2015/09/01/the-decline-of-play-in-preschoolers-and-the-rise-in-sensory-issues/
W-sitting, what is it and how can I aid my child’s sitting position?
W-sitting can some naturally to a child who finds it difficult to sit in other positions as it’s easier for them to sit in the W position due to strength, balance, coordination. However w-sitting can have adverse effects on the early development of the hips and legs. Download the W-Sitting Information Flyer to learn more.
Did you know we all swallow around 900 times a day? Visit this Swallowing Flyer if you think your child is experiencing swallowing with feeding and foods.
Fragile X Syndrome: How you can better understand FXS.
Developed by The Fragile X Association, this 6 minute clip shows real life examples of those living with Fragile X Syndrome and will help you to symptoms and characteristics of FXS.
Autism Spectrum Disorder.
Our Patron Professor Andrew Whitehouse is Head of The Autism Research Team at Telethon Kids Institute. Over time he has posted some interesting and valuable columns and clips to help us understand ASD better. Please visit https://kidsarekids.org.au/about-us/our-patron-2/ to see links to useful resources by Professor Whitehouse.
Organization for Autism Research has created some very useful resources for children living with ASD siblings. There are two hand-books available – one is for primary school-aged/early high school, and the other is for teens. Activities are included for the non-ASD child to help them understand ASD more, identify thoughts and feelings around having a sibling with ASD and how to address those issues.
Links to useful resources
These can include respite, equipment, child-minding, education options, leisure activities, toys and education workshops. You might find some of the following organisations helpful and if they’re not what you are looking for, please come back to us for guidance.
Respite, Support and Guidance
A comprehensive list of support and respite organisations can be found at:
www.disability.wa.gov.au > Services, supports and eligibility > Services and supports > Services provided by support groups
A comprehensive list of advocacy organisations can be found at:
www.disability.wa.gov.au > Services, supports and eligibility > Services and supports > Services funded by the Commission > Advocacy
Carers WA work in active partnership with carers, persons with care and support needs, health professionals, service providers, government and the wider community to achieve an improved quality of life for carers.
ECIA (Early Childhood Intervention Australia)
ECIA can be a very supportive organisation for parents, carers, teachers with children with disabilities. ECIA hold seminars, workshops and advocacy programs and thrive on providing quality information, resources and services. The ‘Starting Out’ handbook is an informative and useful resource that will help you to understand and believe in the importance of inclusion.
ECIA have developed an information booklet helpful to all parents and carers who would like to learn more about early intervention. Download the information booklet here.
Helping families of children with disabilities and special needs to carry their load by providing practical information and support, and connecting them with the services that they need. Kalparrin helps families connect with other families in similar situations through.
Miracle Babies Foundation is Australia’s leading organisation supporting premature and sick newborns, their families and the hospitals that care for them. Since 2005, Miracle Babies Foundation has been passionate in developing and providing vital programs and resources to support and enhance a family’s experience from a threatened pregnancy, hospital journey with a premature or sick newborn, the transition to home and beyond.
My Time Support Groups
MyTime groups provide facilitated peer support for mums, dads, grandparents and anyone caring for children with a disability, developmental delay or chronic medical condition. Socialise and share ideas and information with others who understand the rewards and intensity of caring for a child with special needs.
Independent Living Centre of WA (ILC)
Provides information and advice, assessment, funding and hire services that enable Western Australians of all ages and abilities to live more independent and fulfilling lives.
Service areas include respite and carelink, multicultural aged care, assistive technology and equipment, occupational therapy driver assessment, Home and Community Care regional assessment, and grants and equipment funding.
WA Special Families
WA Special Families is an on line facebook community for families and carers of children with special needs.
It is a place for families to communicate, share ideas and chat about life in a special needs family.
Understanding Autism Pty Ltd is a Clinical Psychology Practice specialising in supporting children, adolescents and adults with autism spectrum disorders (ASD) and other developmental delays and their families.
Schooling and Child-minding
The IPSP (Inclusion and Professional Support Program) allows every child the right to safe, supportive and quality schooling, child-care or in-home care.
ECIA (Early Childhood Intervention Australia)
A link to education options videos for parents of children with disabilities that have been developed by the ECIA WA/ NT alliance. These videos may be a helpful tool to guide you in thinking about schooling and education options for your child.
Toy and Library
Noah’s Ark Toy Library and Supported Playgroups
Noah’s Ark provides essential support services to agencies and parents working with children and young adults with disability, including specialised toys, resources and educational development programmes. The toy library has hundreds of toys for children with special needs, books, specialist resources and equipment and a mobile and postal services for regional, rural and remote areas.
Early Days Workshops
Early Days Workshops are specifically for parents and carers in the “early days” of their journey through the diagnostic process; and for those with a child recently diagnosed with an Autism Spectrum Disorder.
Kids First Aid
Kids First Aid offers the only first aid courses delivered exclusively by experienced paramedics, designed to teach parents and caregivers how to respond calmly and confidently to 10 of the most
common first aid emergency situations.
Equipment Modified or Customised
Dreamfit Foundation is a not for profit organisation that is making dreams possible for people with disabilities through innovative equipment solutions. Their skilled and passionate team of engineers and therapists are committed to supporting people with disabilities to get out and try new activities, engage in their community and overcome challenges in their everyday life.
K-equip (Kenneison Family Disability Equipment)
K-equip aims to provide all people with disabilities in WA access to an efficient means of obtaining non-medical equipment that fully meets their needs and will be a meaningful addition to their life. Their scope of products includes both daily living essentials and recreational items.
Leisure and Hobby
Riding for the Disabled
Riding for the Disabled Association of Western Australia (RDAWA) is a voluntary, not for profit organisation that provides opportunities for people with disabilities or special needs to develop their abilities and enrich their lives.
My Leisure Holidays
Group or individual holidays for people with physical and/or intellectual disabilities and their families.