L to R – CEO, Kids Are Kids! – Jane Barker; Medical Director of the UC Davis MIND Institute and Director of the Fragile X Research and Treatment Center – Randi Hagerman; Senior Program and Clinical Coordinator, Kids Are Kids! – Kate Winter; Founder, Fragile X Association – Wendy Bruce
L to R – Medical Director of the UC Davis MIND Institute and Director of the Fragile X Research and Treatment Center – Randi Hagerman; Think Fragile X Foundation Founders – Maria and Luke Goss
World Renowned Fragile X Syndrome (FXS) Expert, Professor Randi Hagerman visited Kids Are Kids! Therapy and Education Centre on Tuesday 25th August to conduct an afternoon clinic hosted by Kids Are Kids!. A busy time in Perth for Professors Randi and Paul Hagerman as in addition to the clinic, Paul Hagerman spoke to a group of geneticists and pathologists at PathWest at the Queen Elizabeth Medical Centre, organised by Dr David Ravine, and they both addressed a Public Information Session on Fragile X at Floreat Forum arranged i by Fragile X Association of Australia. Kids Are Kids! are delighted to be a part of this important initiative.
Kids Are Kids! are great believers in raising awareness of disabilities, syndromes and disorders. The Kids are Kids! purpose is to support and help families understand their children’s needs. Kids Are Kids! endorse verified new evidence based therapy which will enable our therapists to provide the best service to families. Jane Barker, CEO said, “Fragile X Syndrome is close to our hearts, with two gorgeous little boys that we know very well having the syndrome – Ethan and Logan Goss. Their parents, Maria and Luke Goss have done amazing work to help raise awareness of the syndrome, creating The Think Fragile X Foundation, throughout the year they hold fundraising events with their biggest being the annual Gala Dinner which in its first 2 years have raised in excess of $200,000 for Kids Are Kids!”.
Fragile X Syndrome is a rare inherited genetic condition that can lead to intellectual disability and behavioural difficulties. The Hagermans’ Perth visit was part of an Australia wide initiative to educate families and the health industry on the implications of Fragile X in both carriers and those fully affected by the condition. Kids Are Kids! Patron and Head of the Developmental Disorders Research Group at Telethon Kids Institute, Professor Andrew Whitehouse said it is so important for experts like the Hagermans to visit Australia to share their research and clinical experience, gained over 30 years.
The Fragile X Association of Australia is a national charity, dedicated to improving the health and wellbeing of people affected by Fragile X syndrome, and their families. It will endeavour to do more work with Kids Are Kids! in the future to raise awareness and keep families informed of new research and therapy strategies to help with the complications involving FXS. “Randi and I had a terrific day and Kids Are Kids!, Randi enjoyed seeing the centre, meeting the Kids Are Kids! team, and the chance to spend time with four of the Fragile X families”, said Wendy Bruce.
Kids Are Kids! continue to help Ethan and Logan reach milestones and will honour their pledge to help raise awareness of FXS. To speak to a child health expert or learn more about Kids Are Kids! visit www.localhost or call 9313 6566.